Can't believe it has been so long since I blogged! So hear is the update. We finally got into a new neurologist who has been fantastic so far. She actually was the doctor that diagnosed Zoey in the very begging and remembers her. This dr. Has made her own practice and what a change it has been. She calls back the same day when I leave messages and even gave me her email address which of course I lost, but still amazing! I talked to her all about my concerns with Zoey and starting new meds again. After a lot of discussing we settled on zonisamide. Still a scary, crapy drug but the least scary of them all and the one I felt comfortable with. So now we have been on this mes for something like 8 weeks. We had to increase her dosage because she was having early morning breakthroughs that would wake her up crying with cluster seizures. She has been on the increase for almost 2 weeks and it seems to be working so far!
Tomorrow we start another fundraiser for little miss Zoey! I know I know 2 in one year! Yes a lot but this one she was able to get into last minute and best of all I didn't have to plan it! Also it's in summer so no having to compete with christmas. Don't worry no more after this for awhile!
Also the other good news is that our hard work is paying off! We are in a research about genetics and infantile spasms. Haven't done anything yet but I love that we are doing something productive to help others!
