Fundraiser Time!

It's Finally here! Tomorrow is the big day, and Im at home pretty much freaking out. So many things to do and try to prepare for, then of course snow... I can't do anything about the weather, but we have been working extremely hard getting this event together. Round of applause to my friend and other mother of an infantile spasm baby Lucretia Stallings. She spent TONS of time getting this event ready.  I have spent my day going through all the many donations I have received and kid words from family and friends. How blessed am I? I received a gift basket from In-n-out burger... kind of want to keep it, but they put a personal letter to me telling me how they are excited for this event and that they are happy they could help in anyway to make someones life easier. This was a personalized letter! To me, using Zoey's name, and signed. Makes me remember that this is the season. People are good. That makes me excited for tomorrow. Hopefully we will see everyone there! We have so many fun activities and it really is geared for family. Santa will be there and my sister in law has kindly helped and will be taking pictures of kids and santa too. I really do hope that if you can come you will. It will be the best kind of service, food, entertainment, shopping and Santa! Just by showing up and getting a ticket, you have done service. This is my last post and I want to make it count. There is no easier way to give a donation then right here on my blog. Right hand corner there is a button to donate, click and go!  Hope to see everyone there!

Thoughts

I have been doing a lot of thinking this past week of my little Zoey. It's been 6 months since her diagnosis and I have been reflecting on how my feelings and emotions have changed since then. When I first found out about infantile spasms I was crushed. All the dreams I had for my girl were gone. I read story after story of parents with children with infantile spasms and how their kids are so dependent upon the parents for the rest of their lives. Getting dressed, eating, changing diapers on your adult child. 50 to 1 the stories were heartbreaking not uplifiting. I stopped reading stories. Only recently has my mindset changed.

I can't tell you what has exactly changed, but my heart is changing. I look at my beautiful child and I see her absolute love for me. She will stop and stare at me, then pull out this beautiful toothy grin. A grin just for me. Because I'm her mom. And because I'm her mom I will do anything to make her happy and enjoy her life. If making sure she has a clean bum at 30 years old, then so be it. Zoey didn't ask for this, and while I take care of her, she is the one living this life. As her parent I am going to give her the best and happiest I can. Just like I want to do so for my Joseph. I have a connection with her that let's me enjoy her smiles and laughs. For now I will cling to that and be happy. I know my fears and worries will always be there back in my mind, but those will be pushed back and I will be happy! For those struggling with same emotions, just hang on. It does get better. There is always hope. Feelings change, emotions change, and happiness comes.

For those who want to meet my special girl and he protective brother, come to our fundraiser this Saturday at 3 to enjoy shopping, food, and entertainment! Deseret peak indoor arena in tooele, ut!
Santa will be there too!