Finally happiness! Zoey has been on ACTH now for almost two weeks and hasn't had a seizure since Tuesday! ( knock on wood) it has been great to not have to see her suffer anymore. Although giving injections hasn't been so fun, she handles them like a trooper. The down side of this new med is cranky, no sleepy, high blood pressure baby. I will still take that over seizures anyday! The plan is to wait a little longer then get another EEG done to make sure we are good. Then hopefully we will be lucky and not have a relapse.
On other news, the awareness week is a go and we will have the luau! So excited! I was able to go to my old work and talk to the Dr.s about infantile spasms and give them information to help diagnose and treat. It went really well and I need to start calling around for more places to go. I was so happy a fellow IS mom was able to come and help me with it and have another perspective!
Also as a proud mama, Zoey got 3 teeth all at once! Painful, but so cute.
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