Thursday we went in for another EEG to make sure spasms weren't back. Lucky for us there is no infantile spasms going on. She still shows abnormal signs which means she has seizures going on (duh!). So now we wait until Tuesday to talk to our neurologist and find out what step to take now. I have to say she was the cutest little girl for the EEG. If you have never had one, they hold your head still then put tons of goo and electrodes all over your head. I would say about 20-30 electrodes. She was smiling and grinning and making everyone laugh. No crying or fighting. She was a beautiful little toddler making everyone love her. She is good at that! Her favorite person is joe joe her brother who continuously tries to make her laugh.
Friday, September 12, 2014
Tests,tests, and more tests!
Okay here is the big update for everyone. Zoey was taking a med called zonisamide that I had high hopes for, but did nothing. Now we are on another medication called vimpat. It seems to be helping, but not enough. Instead of having seizures daily, she is having them every 2 or 3 days. After watching these seizures, I had a huge fear that her infantile spasms were back. So back to the testing games we went. She had an MRI on Wednesday which was long and made us all exhausted. Results came back good. Last year she showed some deep tissue injuries from her spasms. This time, there were no signs of injuries at all. Old or new!
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