That is exactly how I feel. Ahhh! The process of trying to determine what medication to try next has been exhausting and scary. The pressure of trying to choose a medication that is the best one to stop her seizures has brought on sickness, crying, tantrums, and sleepless nights. I'm not talking about my 2 year old either! After speaking with the Dr. And also fasting and trying to get advice from other families in this situation, we decided that vigabitrin is our best bet. We risk the tunnel vision, but we are hoping that she won't have to be on it for long and her eyes won't be affected. So we are on day one. I would love to tell you the results, but wouldn't you know it, I got sick. Since Zoey still has immunes that are low from steroids, she went for a stay at grandma's house. I miss my little baby! Amazing how such a little person has such an impact on the whole house. I am getting second hand knowledge about Zoey now. What I do know is that so far she still has them. But it hasn't even been a day yet so hope is still there. I want to give this med a couple weeks to see if there is improvement and if not we will re-evaluate again about which med to try. Zoey loves kissy noises and whistling and will squeal with delight. Such a happy kid through all of this, I love that baby so much. Even Joseph told me he wants his sister to come back! The good thing about Joseph and I being sick, is we get to spend some time together and have some fun with each other alone. Love my kiddos!
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