Team Zoey!

Stressful week! As the Dr.s gave the ok to give her a higher dose of medicine, it also led to a lot of blood pressure checks. Normally I am supposed to get it checked twice a week. However, when I went in her BP was too high. She went from being around 104/ 65 to 110/75. Freaked me out! They had told me they wanted her 100/55 or below... So panic totally set in. 
After being extremly frustrated with never getting the BP checked correctly I got a cuff at primary children's and took it to the hospital here in Tooele. Low and behold the cuff doesnt fit their machine... At least this time they found a cuff that was her size and put it in a place specifically for Zoey. I have always said how bad the tooele hospital was, but the ER nurses have been so good with us, I am changing some opinions.  Zoey had a really high BP that went up to 135/93. Really not good, so we had to stop the dose for a night( which was perfect because after 2 nights of no sleeping, I finally got 5 hours!).  The Dr.s put her back on her old dose and we had to go in and check her BP every day. BP went back down to 110/80 ish.
Finally today the nurse we report to, met with the neurologists to go over Zoeys case. They told me that Zoey's BP was still normal while on prednisolone and to increase the dosage again. So saying all of that... I am happy. We had a fast on Sunday, that we specifically wanted. 1. Was her blood pressure would be ok. 2. That she could stay on this medication, because even though she is grumpy and doesn't sleep, it is still the safest, least damaging med she can be on. So the fasting and prayers are working! Please keep them coming, and another fast on Sunday is planned for those who want to.continue to help. We wait and take BP this week again and check in on Monday for another evaluation. So our prayers and fasting will be again for her BP and also for this med to kick these seizures out. We are on week 4 of treatment and if I remember correctly she can only be on this med for 6 weeks. 

Please keep praying for Zoey! She is still smiling and loves to be held. And loves to stand in her bath. Not sit...just stand. What a tough kid I have! Joseph is loving going to the hospital. He already has all the nurses wrapped around his finger. He gets teddy grahams everytime he goes in. I always get reminded in the morning that we need to take Zoey to the hospital!